| Location | Texas |
| Age | 7 years |
| Cause of Death | Cancer |
| Date of Birth | 07/07/2000 |
| Date of Death | 06/10/2007 |
| Visitors | 5,375 since 06/10/2007 |
| Creator |
July 7th 2000 - October 6th 2007
On March 13, 2007 Trinity was diagnosed with a rare, inoperable brain tumor called a Diffuse Pontine Glioma. On that day the doctors gave us a prognosis of 6-12 months. Please read our story...and help our family fight to find a cure!!
On July 7, 2000 John and I welcomed our new baby girl, Trinity Rhyan Bright,into the world with open arms. Trinity was born at 10:51a.m., weighed 7lbs. 2oz. and was 19 inches long.
Trinity grew to be a very healthy, vibrant little girl with a hunger for life. She attended 2nd grade at Greenfield Elementary where she was a straight "A" student.
Her life was as normal as normal could be, until Saturday, March 3, 2007. On this day she woke up as normal, had eggs for breakfast, went to her soccer game, came home, showered and acted as though it were any normal day. As I was brushing her hair, Trinity noticed that she could see two images of herself in the mirror. She told me immediately, but I thought she was just being silly. I sent Trinity to put on her clothes and shoes but, unlike every other day, today she had to ask for my help...she couldn't see her laces clearly enough to tie her shoes. As I bent down to help her with her laces, she made the comment that I had two heads! I looked up at my precious little girl to find that her eyes were crossed! Trinity had double vision.
I called Trinity's pediatrician the next morning and they requested to see her right away. We went to the pediatrician's office at 11:30. Her regular doctor wasn't available so we saw someone else, Dr. Dalton. Dr. Dalton immediately called a pediatric eye specialist and they decided we needed to see him on Monday.
On Monday we saw Dr. Packwood...he gave us three possibilities...rapid eye loss, nerve loss, or a tumor. He was very optimistic and said we would wait until Friday, see if things changed, if they didn't we would proceed with an MRI just a precaution.
In the meantime Trinity wore glasses with a patch over one eye to keep her from having constant double vision.
We saw him (Dr. Packwood) again on Friday and Trinity's vision was the same, no changes. He suggested we move forward with the MRI, though confident we wouldn't find anything life changing.
Monday, March 12,2007 we went to Cook's surgery center for an MRI. We were told we should have results within 3 to 10 days. That evening at 9:30p.m. the doctor called. He spoke to John. He told John that they had found something in the MRI and needed us to meet with an Oncologist at Cook Children's Hospital on Tuesday at 1:30p.m. John and I were so scared, what was happening??
On Tuesday, we went to meet with Dr. Olvera at Cook's. Trinity went and played with the Child Life Specialist while John and I spoke with the doctor. It was then that she gave us the horrible news!!
Trinity was diagnosed with a Diffuse Pontine Glimoa. She was given a life expectancy of 6-12 months.
This is a rare type of cancer that effects only 5 in 100 brain tumors reported.
These tumors are located in the brainstem, at the base of the brain. They are usually diagnosed in children ages 5 to 10. They are difficult to treat because the tumor cells grow in between and around normal cells. It is impossible to remove a tumor in this area because it interferes with the functioning of this critical area of the brain.
Some symptoms are muscle weakness on one side of the body, swallowing problems, speech problems, crossed eyes, drowsiness, hearing loss, and personality changes. The brainstem has cranial nerves that control many of these functions. The tumors affect these nerves and cause symptoms.
These tumors are treated with radiation therapy, which are high-energy X-rays, gamma rays, or electrons that destroy tumor cells. This treatment can reduce symptoms significantly, but there may be some permanent damage caused by the tumor which can’t be helped. Steroids, another type of drug, are often given to improve some of the symptoms. Surgery is not part of the standard treatment because it is too damaging to this part of the brain.
Because they are difficult to treat, the outcome for brainstem gliomas is poor. After diagnosis, the survival time is on average 9 to 12 months. To improve the outcome, doctors have tried giving higher amounts of radiation, or using chemotherapy medicines to kill the tumor cells. Research is underway to achieve better results. When the tumor recurs, the focus of treatment is on managing symptoms to make sure the child is as comfortable as possible.
As you can imagine we were devastated by this news...how could this happen to our sweet baby girl?
Despite our time given, we lived every second to it's fullest potential. The three of us spent our time making beautiful memories. Trinity lived her last 7 months on this earth with such a zest for life! She smiled, laughed and enjoyed every minute she was given dispite her illness. She never complained once! We traveled the world, or so she thought. We traveled to Disney World (twice), California, Disney Land, San Diego, Hawaii, Puerto Rico, Montego Bay Jamaica, Grand Cayman, Cozumel, Nassau, Castaway Cay, Sea World, Discovery Cove, and many more. Trinity had the opportunity to indoor skydive, outdoor skydive, parasail, jet ski, swim with dolphins & sharks, and even got to meet the Blue Man Group! Even in her last days, struggling just to breathe, Trinity played card games, did puzzles and even gave all of us beautifully painted faces!
Trinity's favorite holiday was Halloween. Nearing the end of her battle, John and I knew she wouldn't make it until Halloween. John made flyers and went around to our neighbors asking them to hand out candy on October 4th so that Trinity could Trick or Treat one last time. Our gracious neighbors did more than we could have ever imagined!! They pulled together and made October 4th the best Halloween any of us had ever seen. Everyone dressed up, the streets were full of children, there were games, goodies, clowns and even a fire truck! Trinity had a wonderful time...it was wonderful to see her last days filled with so much joy!!
On October 6th, just two short days after the Halloween celebration, Trinity passed away peacefully in our home with John and I by her side. A beautiful life taken by such an ugly disease.
...John and I will fight as long as it takes to find a cure for this horrible illness. We have to save our children!
❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤.... ✣...THINKING OF YOU ON YOUR ANGEL DAY... ✣ ... .❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
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*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤........... ✣... REMEMBERING YOU WITH LOVE....✣ ............. ❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤
If I could be an Angel,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I know just what I'd do.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I would guard someone special,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
Someone just like you.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd be the friend you need,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
Anytime day or night.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
When you need someone to lead,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd guide you with my light.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And if you began to stumble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd reach out my hand to you.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'd help with all your trouble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And take away your sorrow too.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
But since I'm not an Angel,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
By your side I'll stand.
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
And if you begin to stumble,
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
I'll reach out my hand.
(UNKNOWN)
♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥.*.♥
ღ ღ ღ ღ All My Love Beautiful Angel ღ ღ ღ ღ
*ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ*
*ღ.......ღ* *ღHeavenly *ღ.......ღ* *ღ shona sengupta. ..ღ*
*ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ*
How will heaven be?
As far as I can see
It will have huge bells
And will be situated on clouds
It will have many golden wells
That will so often swell
Rain will be abundant
And the sun will shine all day long
Angels will play on the harp
The sweetest summer song
Music that will touch the heart
While those beneath will shed drops of sorrow
Little will they know what will happen on the morrow
But to them up above
As plain and clear it will be
As far as far as I can see
Yes there will be misty alleys
And lush green meadows
Fresh with the fragrant smell of spring
Winter will never be bitter
Summer never so hot
Autumn never so bare
And resources never so scarce
Food for all will be relished by all.
Grateful we’ll be as grateful can be
Mountains high and strong and brown
Surrounding that hidden land,
Beautiful and vast seas I see
There colour as blue as sapphire can be
And the white waves lashing upon the shore
Sitting on the flattened grey rocks
Who would not call it absolutely heavenly?
However it might actually be,
But can we still not see
There will lie behind this seen
A relieving feeling of bliss
For where not have we been
But is this not by all believed
That after one’s decease
This is the land of eternal peace
Where we all ultimately reach?
*ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ* *ღ..........ღ*
❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤.... ✣...THINKING OF YOU ON YOUR ANGEL DAY... ✣ ... .❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
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*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤........... ✣... REMEMBERING YOU WITH LOVE....✣ ............. ❤
*ღ*~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ**~~~~~~*ღ*~~~~~*ღ*
❤
♥
-♩♪♫♬ HAPPY BIRTHDAY TO YOU ♩♪♫♬
♫♬ HAPPY BIRTHDAY TO YOU ♫♬
♫♬ HAPPY BIRTHDAY DEAR TRINITY ♫♬
♫♬ HAPPY BIRTHDAY TO YOU . ♫♬
-♩♪♫♬ ~ * ~ * ~ * ~ ♩♪♫♬
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…………..…............... ..I.....LOVE FROM JUDE. X X
♥
♥ 4TH OCTOBER 2009 ♥
♥
-(’’♥’’)
--’’♥(’’♥’’)~SUNDAY
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~BLESSINGS
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~ANGEL.
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~YOU'RE
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~ALWAYS
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~IN
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~MY
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~THOUGHTS.
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~GOD
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~BLESS
-----’’♥’’
FOREVER LOVED, FOREVER MISSED. X X X
♥
♥
♥ 1ST OCTOBER 2009 ♥
GOOD MORNING SWEET ANGEL ..........
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___♥♥♥ ♥♥♥♥♥♥♥♥♥_____________♥♥__♥♥__________♥♥
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______________♥♥♥ _________♥__♥♥___________♥♥
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_________♥__♥♥♥♥♥ ____________♥__♥♥__♥♥♥
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.•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
TOGETHER MY ANGEL WE SHALL BE,
TOGETHER FOR ALL ETERNITY.
TOGETHER TILL THE STARS THEY FADE.
TOGETHER MY ANGEL UNAFRAID.
TOGETHER MY ANGEL WE HAVE LOVED.
TOGETHER MY ANGEL AND GOD ABOVE.
TOGETHER MY ANGEL WE LOVE UNTIL WE DIE.
TOGETHER WE'LL BE,UP ON HIGH.
UNTIL WE MEET AGAIN.
♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
LOVE ALWAYS, JUDE. X
♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
♥
30TH SEPTEMBER 2009
♥
JUST SAILING ALONG YOUR PAGE............
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.~.\==-,,,,,,,,,,,,,,,,,,,-==/~.~.~.~.
~.~\_~....__...__....~_/~.~.~.~.~.
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TO WISH YOU A GOOD AFTERNOON, WITH MY LOVE. X
♥
♥
29TH SEPTEMBER 2009
GOOD AFTERNOON SWEET ANGEL.
A loving gift of Rose's, just one can say it all,
To stand upon time's table, until the petals fall,
To draw the sun of morning, but no more to feel the dew,
On the other side of rose's,
I hurt from losing you.
On the other side of rose's with broken dreams and tears,
Not a shadow of despair, to recall, the precious years,
Alive I seen a rose in you, and feel your memory true,
On the other side of rose's,
My life I shared with you.
With petals gone to fade away, but leave sweet memories,
A velvet touch straight from the heart,
With love shown for me,
As shadows pass with setting sun,
There will forever be,
On the other side of rose's,
Your loving memory.
BY Billy M. Smallwood.
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..`""-----""`....WITH MY LOVE. X
♥
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