| Location | Texas |
| Age | 7 years |
| Cause of Death | Cancer |
| Date of Birth | 07/07/2000 |
| Date of Death | 06/10/2007 |
| Visitors | 3,822 since 06/10/2007 |
| Creator |
July 7th 2000 - October 6th 2007
On March 13, 2007 Trinity was diagnosed with a rare, inoperable brain tumor called a Diffuse Pontine
Glioma. On that day the doctors gave us a prognosis of 6-12 months. Please read our story...and help
our family fight to find a cure!!
On July 7, 2000 John and I welcomed our new baby girl, Trinity Rhyan Bright,into the world with open
arms. Trinity was born at 10:51a.m., weighed 7lbs. 2oz. and was 19 inches long.
Trinity grew to be a very healthy, vibrant little girl with a hunger for life. She attended 2nd
grade at Greenfield Elementary where she was a straight "A" student.
Her life was as normal as normal could be, until Saturday, March 3, 2007. On this day she woke up as
normal, had eggs for breakfast, went to her soccer game, came home, showered and acted as though it
were any normal day. As I was brushing her hair, Trinity noticed that she could see two images of
herself in the mirror. She told me immediately, but I thought she was just being silly. I sent
Trinity to put on her clothes and shoes but, unlike every other day, today she had to ask for my
help...she couldn't see her laces clearly enough to tie her shoes. As I bent down to help her with
her laces, she made the comment that I had two heads! I looked up at my precious little girl to find
that her eyes were crossed! Trinity had double vision.
I called Trinity's pediatrician the next morning and they requested to see her right away. We went
to the pediatrician's office at 11:30. Her regular doctor wasn't available so we saw someone else,
Dr. Dalton. Dr. Dalton immediately called a pediatric eye specialist and they decided we needed to
see him on Monday.
On Monday we saw Dr. Packwood...he gave us three possibilities...rapid eye loss, nerve loss, or a
tumor. He was very optimistic and said we would wait until Friday, see if things changed, if they
didn't we would proceed with an MRI just a precaution.
In the meantime Trinity wore glasses with a patch over one eye to keep her from having constant
double vision.
We saw him (Dr. Packwood) again on Friday and Trinity's vision was the same, no changes. He
suggested we move forward with the MRI, though confident we wouldn't find anything life changing.
Monday, March 12,2007 we went to Cook's surgery center for an MRI. We were told we should have
results within 3 to 10 days. That evening at 9:30p.m. the doctor called. He spoke to John. He told
John that they had found something in the MRI and needed us to meet with an Oncologist at Cook
Children's Hospital on Tuesday at 1:30p.m. John and I were so scared, what was happening??
On Tuesday, we went to meet with Dr. Olvera at Cook's. Trinity went and played with the Child Life
Specialist while John and I spoke with the doctor. It was then that she gave us the horrible news!!
Trinity was diagnosed with a Diffuse Pontine Glimoa. She was given a life expectancy of 6-12
months.
This is a rare type of cancer that effects only 5 in 100 brain tumors reported.
These tumors are located in the brainstem, at the base of the brain. They are usually diagnosed in
children ages 5 to 10. They are difficult to treat because the tumor cells grow in between and
around normal cells. It is impossible to remove a tumor in this area because it interferes with the
functioning of this critical area of the brain.
Some symptoms are muscle weakness on one side of the body, swallowing problems, speech problems,
crossed eyes, drowsiness, hearing loss, and personality changes. The brainstem has cranial nerves
that control many of these functions. The tumors affect these nerves and cause symptoms.
These tumors are treated with radiation therapy, which are high-energy X-rays, gamma rays, or
electrons that destroy tumor cells. This treatment can reduce symptoms significantly, but there may
be some permanent damage caused by the tumor which can’t be helped. Steroids, another type of
drug, are often given to improve some of the symptoms. Surgery is not part of the standard treatment
because it is too damaging to this part of the brain.
Because they are difficult to treat, the outcome for brainstem gliomas is poor. After diagnosis, the
survival time is on average 9 to 12 months. To improve the outcome, doctors have tried giving higher
amounts of radiation, or using chemotherapy medicines to kill the tumor cells. Research is underway
to achieve better results. When the tumor recurs, the focus of treatment is on managing symptoms to
make sure the child is as comfortable as possible.
As you can imagine we were devastated by this news...how could this happen to our sweet baby girl?
Despite our time given, we lived every second to it's fullest potential. The three of us spent our
time making beautiful memories. Trinity lived her last 7 months on this earth with such a zest for
life! She smiled, laughed and enjoyed every minute she was given dispite her illness. She never
complained once! We traveled the world, or so she thought. We traveled to Disney World (twice),
California, Disney Land, San Diego, Hawaii, Puerto Rico, Montego Bay Jamaica, Grand Cayman, Cozumel,
Nassau, Castaway Cay, Sea World, Discovery Cove, and many more. Trinity had the opportunity to
indoor skydive, outdoor skydive, parasail, jet ski, swim with dolphins & sharks, and even got to
meet the Blue Man Group! Even in her last days, struggling just to breathe, Trinity played card
games, did puzzles and even gave all of us beautifully painted faces!
Trinity's favorite holiday was Halloween. Nearing the end of her battle, John and I knew she
wouldn't make it until Halloween. John made flyers and went around to our neighbors asking them to
hand out candy on October 4th so that Trinity could Trick or Treat one last time. Our gracious
neighbors did more than we could have ever imagined!! They pulled together and made October 4th the
best Halloween any of us had ever seen. Everyone dressed up, the streets were full of children,
there were games, goodies, clowns and even a fire truck! Trinity had a wonderful time...it was
wonderful to see her last days filled with so much joy!!
On October 6th, just two short days after the Halloween celebration, Trinity passed away peacefully
in our home with John and I by her side. A beautiful life taken by such an ugly disease.
...John and I will fight as long as it takes to find a cure for this horrible illness. We have to
save our children!
♥ 4TH OCTOBER 2009 ♥
♥
-(’’♥’’)
--’’♥(’’♥’’)~SUNDAY
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~BLESSINGS
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~ANGEL.
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~YOU'RE
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~ALWAYS
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~IN
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~MY
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~THOUGHTS.
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~GOD
-----’’♥’’
-(’’♥’’)
--’’♥(’’♥’’)~BLESS
-----’’♥’’
FOREVER LOVED, FOREVER MISSED. X X X
♥
♥
♥ 1ST OCTOBER 2009 ♥
GOOD MORNING SWEET ANGEL ..........
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___♥♥♥ ♥♥♥♥♥♥♥♥♥_____________♥♥__♥♥__________♥♥
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______♥__()_______♥♥ _________♥♥__♥♥________♥♥
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__ ______♥♥♥__♥___♥_______♥ ____♥
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_ ________♥♥♥___♥___♥♥____ _____♥
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_________♥__♥♥♥♥♥ ____________♥__♥♥__♥♥♥
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.•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
TOGETHER MY ANGEL WE SHALL BE,
TOGETHER FOR ALL ETERNITY.
TOGETHER TILL THE STARS THEY FADE.
TOGETHER MY ANGEL UNAFRAID.
TOGETHER MY ANGEL WE HAVE LOVED.
TOGETHER MY ANGEL AND GOD ABOVE.
TOGETHER MY ANGEL WE LOVE UNTIL WE DIE.
TOGETHER WE'LL BE,UP ON HIGH.
UNTIL WE MEET AGAIN.
♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
LOVE ALWAYS, JUDE. X
♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥ .•**•.. ♥
♥
30TH SEPTEMBER 2009
♥
JUST SAILING ALONG YOUR PAGE............
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........("('o').|)____\____\
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.~.\==-,,,,,,,,,,,,,,,,,,,-==/~.~.~.~.
~.~\_~....__...__....~_/~.~.~.~.~.
.~.~.~.~.~.~.~.~.~.~.~.~.~.~.~
TO WISH YOU A GOOD AFTERNOON, WITH MY LOVE. X
♥
♥
29TH SEPTEMBER 2009
GOOD AFTERNOON SWEET ANGEL.
A loving gift of Rose's, just one can say it all,
To stand upon time's table, until the petals fall,
To draw the sun of morning, but no more to feel the dew,
On the other side of rose's,
I hurt from losing you.
On the other side of rose's with broken dreams and tears,
Not a shadow of despair, to recall, the precious years,
Alive I seen a rose in you, and feel your memory true,
On the other side of rose's,
My life I shared with you.
With petals gone to fade away, but leave sweet memories,
A velvet touch straight from the heart,
With love shown for me,
As shadows pass with setting sun,
There will forever be,
On the other side of rose's,
Your loving memory.
BY Billy M. Smallwood.
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.../:::.. ......\...
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..|:::...........|..
..|:::...........|..
..;:::...........;..
..\:::.........../..
...':::.........'...
..`""-----""`....WITH MY LOVE. X
♥
♥
20TH SEPTEMBER 2009
SUNDAY BLESSINGS............
___________$$$__$_$ $$$ ___________
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___________$$$_$__$_ ____$ _________
__________$$$$_____$ $___$$$$$$ ____
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__$$$_________$$$$$$ $_$$ __________
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___________$_____$__ $ _____________
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GOD BLESS............ LOVE JUDE. X X
♥
i miss her
i missed her so much after i heard i cried. i was sad when she moved away but was even more sad when i heard she was diagnosed with that she was like a sister to me i was her best friend i went to highpointe an bebensee with her we played all the time i wish i could of seen her one more time before she past away i will never forget her i still crie to this day an i will never forget the last day i saw her i wandered if she was doing good at school an if she remembered me but i will never forget her smile it was my fave smile in the hole universe i wish she were still here with love maddie
22ND JULY 2009
❤ THINKING OF YOU TODAY AND EVERY DAY ❤
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰ I MISS YOU ✰ I MISS YOU ✰ I MISS YOU ✰
✰ I LOVE YOU ✰ I LOVE YOU ✰ I LOVE YOU ✰
✰✰✰✰✰✰✰ FOREVER AND EVER. ✰✰✰✰✰✰✰
Tears pour down my face as I read of this special little girl. She truly must have been too good for this world. RIP Trinity. Your family and friends were truly blessed to have you in their lives. I am blessed to "know" you through this tribute. God bless little one. You touched my life today just as I know you touched every life that has crossed your path.
Sweet dreams angel.
What a beautiful special little girl. Trinity had such an amazing family to support her, so glad she got to celebrate her halloween thanks to all the negighbours. Hope youre having a wonderful time in heaven. Sweet dreams xx
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